The World Federation of Haemophilia (WHF) established World Haemophilia Day, a worldwide healthcare celebration held on April 17 each year, with the goal of urging local and national policymakers to improve access to treatment and care for people with haemophilia as well as to promote better control and prevention of the condition.
Haemophilia is a rare, severe genetic hemorrhagic illness that results from a malfunction of the proteins factor VIII and factor IX, which are necessary for blood clotting and coagulation and cause abnormal blood coagulation. Haemophilia can affect persons of any colour or ethnicity, but because it is linked to the X chromosome, men are more likely to be afflicted than women. A boy's chance of developing haemophilia is 50% higher if his mother has the condition, and that risk is equally 50% higher for her daughter. Therefore, even while haemophilia can affect females and cause problems during menstruation and delivery, it is more frequent in males.
The theme for World Haemophilia Day 2023 is "Access for All: Prevention of Bleeds as the Global Standard of Care," which is an appeal to local government officials and healthcare policymakers to emphasise the prevention, protection, and accessibility of effective treatment care for all haemophiliacs. In order to show support for the occasion, the World Federation of Haemophilia has asked well-known sites all around the world to glow red in honour of World Haemophilia Day.
Year-by-year themes for World Haemophilia Day:
World Haemophilia Day 2022 theme: Access for All: Partnership. Policy. Progress
World Haemophilia Day 2021 theme: Adapting to change: sustaining care in a new world
World Haemophilia Day 2020 theme: Get involved to carry the motive of the World Federation of Haemophilia - Treatment for all
World Haemophilia Day 2019 theme: Outreach and Identification
World Haemophilia Day 2018 theme: Sharing knowledge makes us stronger Only 25% of those affected had access to proper therapy in 2000, despite the fact